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The case of Karyn Costello

By johnboy 22 April 2009 50

Steve Dozspot is raising a hue and cry over the case of Karyn Costello who has, apparently, been living in hospital for two years because her disabilities have on into the “too hard basket”.

    “Ms Costello has been confined to a wheelchair, forced to wait since 2007 in Canberra Hospital for a Disability ACT Individual Support Package (ISP), which would enable her to live at home.

    “Karyn’s needs were last assessed for an ISP in June 2008 and her requirements were then categorised as being at the highest level.

    “Since the assessment last year, her condition has improved and Karyn has now regained minimal use of her arms and hands.

    “Despite this improvement, which would significantly reduce the assistance required, it appears the Government is still under the assumption that Karyn’s case is too complicated and costly to address.

    “I have last written to the Minister for Disability on the 7th April asking for an urgent new assessment of Ms Costello. To date, I have not received any response from the Government on when Ms Costello’s reassessment will take place and no indication of a timeline to resolve this case.

The lesson here might be to approach a Government MLA first if one has a problem?

What’s Your opinion?


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The case of Karyn Costello
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Granny 7:22 pm 24 Apr 09

Thanks, willo!

: )

Those interested in helping can contact me at granny1963@gmail.com, but be warned that I don’t check it often. I’ll check it for a few days after this post, however.

My group mainly formed around special ed issues, but we also have people involved in loving and caring for adult relatives; so our issues are broadening as different people join with different pieces of the overall picture.

However, there are many such advocacy groups that are worthwhile.

Our main focus is being small, manoeuvrable and free from organisational bureaucracy and petty politics. We are can-do, up-beat, positive people. Our meetings are unstructured but at the end of them we all know what we’re doing and we do it. We’re not there to bitch and moan, but we do support each other as and when needed.

Some of our members have been fighting these battles for decades. It is exhausting and demoralising, but when you’re not alone it’s encouraging and invigorating. When life hits one person in the guts, another person steps up to fill the gap. When life normalises they’re back and in the stride, and that’s just how it is. We have big dreams and big goals.

Like Martin Luther King we do have a dream. This is every bit the civil rights issue of the 21st century. It needs to be fought and somebody needs to fight it. The time is now.

To me, Karyn Costello is Canberra’s Rosa Parks. Maybe one day she woke up and thought, “Why should I have to stay locked away here?” just as Rosa thought, “I’m bloody tired, why should I give my seat to this white bitch?”

We will not rest until people with a disability have the same opportunities and rights as everybody else. The more groups and individuals work together to pursue this fundamental common goal, the more resources will be provided to go around.

You can’t feed a village by squabbling over a handful of grain.

We are through with begging. We are purposed to enact a specific human rights agenda that endows people with basic, inalienable human rights and dignity.

The circumstances of those in our group have changed quite markedly in some cases, because we are squeaky wheels, but this is not what we’re after. Our goal is that no parent or carer will walk this road again. It’s hard enough, and sad enough already.

willo 6:14 pm 24 Apr 09

Granny said :

Yes it is, and I’m going to do it with a little help from my friends. Lots of things in society have changed. There is no reason to expect this cannot or will not.

By the time we are through with the system no other carer will ever have to fight these battles again.

And I will see you all back on this thread in two years to count the changes we have seen.

cool….keep us all informed and let us all know what can be done to help you in your endeavours

s-s-a 5:58 pm 24 Apr 09

So what do you suggest? I am genuinely interested to know. What were you alluding to in #41 and how can I/everyone help?

Granny 11:49 pm 23 Apr 09

You could dispense with the negativity. That would help.

s-s-a 11:43 pm 23 Apr 09

Two years?? Would be nice, but I won’t be holding my breath.

And if I thought I could usefully do something to help I would.

Granny 3:56 pm 23 Apr 09

Thanks, BerraBoy … your help and support are so appreciated!

: )

BerraBoy68 3:53 pm 23 Apr 09

Granny said :

Yes it is, and I’m going to do it with a little help from my friends. Lots of things in society have changed. There is no reason to expect this cannot or will not.

By the time we are through with the system no other carer will ever have to fight these battles again.

And I will see you all back on this thread in two years to count the changes we have seen.

+1. With you all the way, granny!

Granny 2:56 pm 23 Apr 09

I actually believe that it’s a very exciting time within the assembly and also the wave of change that is sweeping in relation to disability.

There are some powerful advocates for disability in every party, and I appreciate all their efforts in effecting the change taking place.

I think the ACT is going to be a world-class model in many areas, education and disability in particular.

To all those MLAs and MPs who are assisting this process, or even not trying to stop it, I thank you from the bottom of my heart.

RayP 2:49 pm 23 Apr 09

One aspect to this thread, as there now seems to be to a number of threads on Riotact, is that there seems to be a solidifying perception – assumption that despite the election results last year that there has been no change in he functioning of the ACT Government.

Such hopes as people may have had after the election seem to have disappeared. These hopes also seem to have disappeared without people noticing or talking about it or perhaps making a conscious assessment.

I don’t know if this assumption of no change is justified across the ACT Government. And I may be misinterpreting the comments and underlying assumptions.

But I think it it may be interesting and politically significant if this assumption is locking in place in the ACT community.

Granny 2:30 pm 23 Apr 09

Yes it is, and I’m going to do it with a little help from my friends. Lots of things in society have changed. There is no reason to expect this cannot or will not.

By the time we are through with the system no other carer will ever have to fight these battles again.

And I will see you all back on this thread in two years to count the changes we have seen.

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