This has come in for your consideration:
Concerned friends of the Hillier family are organising a fundraiser…
John and Linda have two delightful boys who, despite their disabilities (Duchenne Muscular Dystrophy, Autism and Diabetes), enrich the lives of their parents and all of us who know them.
We thank you in anticipation of your support and hope you will invite a few friends and form a table to join us for what promises to be a worthwhile evening.
$55.00 per head or $500.00 for a table of 10
6:30pm for a 7:00pm sharp start!
Master of Ceremonies: Tim Gavel ABC Sport
Quiz Master: Steve Doszpot MLA
Signed Wallabies Jumper
Signed Australian Seven’s Jumper
Signed Brumbies Jumper
Signed Raiders Jumper
Signed Canberra Capitals Jumper
Please confirm with Ross or Steve if you’re coming and if you can’t but would like to make a donation call
Ross Dobson – Mob: 0412 064 207 or via e–mailto: firstname.lastname@example.org
Steve Doszpot – Mob: 0404 868623 or via e–mail to: email@example.com
This fundraiser has come about as a result of a number of us realising that urgent assistance is required to alleviate the pressures that have been building on John & Linda over the years, to give them some capacity to cope, to get the boys the extras in the way of equipment and care that will assist their day to day issues and to build some reserves to take care of some additional much needed home maintenance issues that they have had to keep putting off because of the constant medical expenses.
We ask you to “Unchain your Hearts” and help The Hillier Family Fundraiser on 22 November.
ABOUT THE HILLIERS: John and Linda have two delightful boys who, despite their disabilities, enrich the lives of their parents and all of us who know them.
Lee is now a student at the ANU studying Politics and Sociology. His grades are exceptional and he continues to amaze us all. Dean is at the Woden School and is progressing well though he is yet to talk about it. He is 13, does not talk, is not toilet trained, his diabetes is best described as usually unstable; his problems with depth of vision mean he has problems with stairs and his gluten intolerance also adds to the expense of caring for him.
Lee’s expenses, on top of the usual things that young people spend their money on – iTunes, music and clothes, include things like the tubes, masks and filters for his breathing assistance equipment, $90 per week for his transport to and from uni, as well as the cost of the carers who travel with him. What his small disability pension does not cover John and Linda need to.
Dean has medical expenses as well and, for example, his incontinence issues cost the family approx. $8,000 per annum on nappies, pads and pull up pants in an attempt to keep him dry and free from nappy rash. His diabetes management is also horrendously expensive as are the rest of his medical issues. The family has, as you can imagine, bills that most of us cannot contemplate let alone control.
John works two jobs and Linda is the full–time carer for both boys. Neither of them has had a break from the 24/7 care and, in fact, the last time they were able to go on holidays – it was to a purpose built, disabled friendly, facility at Narooma in 2008 – as it turned out both boys became sick during those holidays. Carers ACT assisted John and Linda for a week at the farm, as a small way of repaying John and Linda for always making themselves available to assist other parents who are just starting down the road of caring for children with disabilities.