ME/CFS Awareness Week

the nsw thing is relevant, thanks for posting. ignore them. they think they are cleverpants.

i’ve seen the nsw/act group’s blue ribbons being sold around the place before and when i’ve worn mine, people have often asked what it is for, and not understood what CFS is, or if they’ve heard of it, they have immediate cynical reactions to it. it can be a tough condition, and one that is easy to co-exist with heavy depression (sadness *nod to tap 😉 )
it sucks and without support and awareness from the general community (or some doctor/workplaces sometimes!) it can be even harder,because you have that guilt/insecurity that maybe you are making it up, or could try harder, or hide it completley, or just need to rest more, or eat more/less or whatever!

great to see there is a running campaign still. 🙂

My observations.
Key word in title of post is “Awareness”.
Also, there is a reference to ACT CFS link.

It’s such a difficult condition to diagnose, so these links have been most useful.

Very clear post and most relevant to Canberra, thank you.

As a standing point of order, recognise when you are being baited, and DO NOT FEED THE TROLL.

The moment you give in, they feel a small twinge of validation as part of your brain dies.

thanks Duke 🙂 I just noticed the (Troublemaker) tag under my name! oops!!! Lived up to that today I guess 😉

saraj – don’t feed the trolls! Thank you for bringing this worthy initiative to our attention 🙂

Mælinar – You’ve missed the point entirely.

As the title of this post suggests – its about bringing awareness to ME/CFS – regardless of events happening in NSW.

Why can’t I bring attention to an initiative in another state to RiotACT readers?

Any publicity for the condition and increased community awareness has to be a good thing.

Next Support Group Meeting (Tuesday 6 May) – Generic Medication

saraj – I disagree. Now we know its not just a Sydneycentric event, and indirectly, that you know a little bit more than you revealed in your first post.

Where is the closest event to the ACT ? (if there are none being held in the ACT)

How would you see an ACT person getting involved in this event ?

*sign* as Ive seen happen to others many times, and now to muself. Members of this site seem to take great delight in moving to stifle others from contributing.

Mælinar, it may well be hosted by the NSW ME/CFS Society but I can assure events are being held outside of Sydney, right across NSW in fact.

Do you not think that a number of people who access this site, yourself included, know someone with CFS and might want to find out more information?

Congrats to you though for having CFS and still having the strength to use your computer on a regular basis to make others feel useless.