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ADHD in canberra?

By emmabanyer 20 February 2010 35

Hi Canberrans,

Does anyone know what services/support groups there are for adults with ADHD in Canberra?

If any?

Thanks in advance!

What’s Your opinion?


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ADHD in canberra?
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Trishcampbell 8:57 am 07 Apr 15

Good luck with your search as a parent who ran a support group for parents with kids who had ADHD this was invaluable. To all the naysayers I agree ADHD is over prescribed but please don’t accuse every case of being rubbish it’s not. We tried everything behavioural management, diet, alternative medicine, educational kiniesiology you name it we did it and the only thing that was the most effective was Ritalin. We even stopped Ritalin during school holidays as it scared me so much but now my son is an adult who has doctors tell him you outgrow it what a load of cr*p so I am asking if Emma can email me regarding the doctor she saw hsirt12@hotmail.com thanks

deezagood 9:56 am 18 Mar 10

Please don’t take it personally Emma; some of the folks on this site are very ignorant armchair critics; and if they don’t understand something they will sledge it (and sledge the poster) rather than showing any sort of compassion or sensitivity – or admitting that they don’t understand. But as you have found, there are also some really helpful people on this site too; just tune in to those people and tune the rest out. It never ceases to amaze me how many people ‘don’t believe in food allergies’ or ‘don’t believe in ADHD’; primarily because they have never been touched by either of these very real conditions. Good luck with your endeavors to find a support network.

emmabanyer 9:11 pm 17 Mar 10

I posted this a while ago and haven’t looked back on it, but now that I have I’d like to say:

Thanks Lulu for your post – it means a lot to me. And thanks to Mordd – even though I think you are generalising your own experience to everyone and I don’t agree with a lot of your claims, I appreciate that at least you have expereince of this, and a reason to be so angry. (I wish you weren’t of course, I wish you peace and forgiveness in your life.)

I have been diagnosed and am trying medication. It’s going really well at the moment. I am able to get through a whole day at work and my anxiety levels are far lower. I am still quite keen to get in touch with a support group, just chat to other adults with ADHD diagnosis.

It is amazing that people feel so passionate about this issue that they are willing to abuse others whose opinion is different. Lulu says:

“I find many of the above comments hurtful and offensive. It’s very easy to blame the mother and very trite to say just feed the kids properly. Sometimes you have to make very hard decisions to be a good parent. The hardest I’ve ever had to make were to send my son away and to approve his medication. They have turned out to also be two of the best decisions.”

And I agree with her. You know what is sad? I wrote the original post because I wanted to reach out, connect with people, share my feelings, get some help, etc. Only a few people actually responded with suggestions – thanks to those people.

It never ceases to amaze me how arrogant and sure that they are right some people are – and the agression in their writing! – even when what they are saying can be insensetive and hurtful to others.

deezagood 5:50 pm 24 Feb 10

http://www.sydneydevelopmentalclinic.com.au/about_us.htm

I’m thinking these folks probably disagree that ADHD is a myth. Some good stuff on this site.

astrojax 3:05 pm 24 Feb 10

thanks lulu, honest and compelling post. just because there may be a bit [lot? irrelevant] of mis-diagnosis doesn’t mean the existence of this debilitating disorder is a furphy. i, too, wish some of these deniers could spend some time in a sufferer’s head…

Inappropriate 5:36 pm 23 Feb 10

Mordd said :

Fact is there a lot of very well-respected psychiatrists and clinicians out there who agree that ADD/ADHD is bullshit, it’s certainly not just “sufferers in their ignorance decrying their own problems” or however you wish to present it. The one thing we should all be able to agree on is there are a LOT of questions surrounding the legitimacy of ADD/ADHD these days, and it’s certainly not something the medical community is united on in their opinion on it.

You could say the same about any mental health issue: depression, anxiety, borderline personality disorder, psycopathy/sociopathy, … and you’ll find many well-respected psychiatrists and clinicians who agree that some mental health issue is bullshit.

It is unfortunate that ADHD is popular for the wrong reasons because it’s associated with kids and evil stimulant medication.

lulu 4:52 pm 23 Feb 10

The day my son elected to go on ritalin, I cried all the way home from the hospital. How could it have come to this? I’m a caring and capable mum of a lovely boy who is no trouble at all except that he is very distractable and does NO schoolwork at all. When he finished primary school, I knew I had to send him to a private school as the reputable government high school that my daughter had just finished attending simply didn’t have the resources to stop this bright but inattentive kid from falling through the cracks. I’m a single mum who receives no child support so it was a major financial committment.

I did all the “right” non drug things: good diet of fresh food prepared with love, dance, music and sporting activities, books always available (and read out loud to him) etc etc etc…

Two thirds of the way through year 7, I knew I was failing. A boy who impressed all who meet him with his obvious intelligence was failing maths and English. It was an emergency. I asked my parents if he could live with them so that they could provide more structure, supervision and discipline than I could as a single working mum. He also needed a man and my step-father is a fantastic, strong and caring role model.

My mum took him to a psychologist. The diagnosis was mild ADD of the distractable kind and the reccommendation was medication. The pediatrician agreed, so did my parents and my son.

When I arrived home, I spoke on the phone to an artist I was helping with a grant application. I told him what had happened and shared my feelings of failure. He said: “I wish my mum had put me on ritalin. All my friends who went on dexies or ritalin are happy people with good jobs now. I just abused speed for years ’cause it enabled me to focus on my art. Now I can’t take it any more ’cause it makes me depressed.” I found his point of view very reassuring.

A year later, my son is living back with me. He’s enjoying his natural talents in maths and science and last semester he got a B for maths – I was so proud. He still creates games, music, web-sites and computer programs and has certainly lost none of his spark.

I find many of the above comments hurtful and offensive. It’s very easy to blame the mother and very trite to say just feed the kids properly. Sometimes you have to make very hard decisions to be a good parent. The hardest I’ve ever had to make were to send my son away and to approve his medication. They have turned out to also be two of the best decisions.

Mordd 3:39 pm 23 Feb 10

Inappropriate said :

Mordd said :

but I will deny the legitimacy of ADHD/ADD itself, the science simply doesn’t add up on it, and it hasn’t ever since about 2005 when numerous short and longer term studies into the “illness” have raised more and more questions that show that it is mostly poppycock.

There are recent brain scan studies that show that the brains of sufferers with ADHD have problems with their dopamine receptors.

http://www.eurekalert.org/pub_releases/2009-09/dnl-dib090309.php

To strengthen the statistics and control for these factors, the current study looked at 53 adult ADHD patients who had never received treatment and 44 healthy control subjects — all of whom had been carefully screened to eliminate potentially confounding variables.

Wow, you’re right, a study involving less than 100 people, and no definition of how the “ADHD” people in the study were diagnosed either. Harldy an overwhelming piece of data there, let me find some links to the long term studies done that looked at thousands of people over 5+ years. Anyone can do little mock trials with small numbers of people and twist the results any way they want. I’m not saying that this study isn’t necessarily comprehensive in their methods, but a study sample that small is hardly comprehensive in and of itself.

Fact is there a lot of very well respected psychiatrists and clinicians out there who agree that ADD/ADHD is bullshit, its certainly not just “sufferers in their ignorance decrying their own problems” or however you wish to present it. The one thing we should all be able to agree on is there are a LOT of questions surrounding the legitimacy of ADD/ADHD these days, and its certainly not something the medical community is united on in their opinion on it.

Inappropriate 11:54 am 23 Feb 10

Mordd said :

but I will deny the legitimacy of ADHD/ADD itself, the science simply doesn’t add up on it, and it hasn’t ever since about 2005 when numerous short and longer term studies into the “illness” have raised more and more questions that show that it is mostly poppycock.

There are recent brain scan studies that show that the brains of sufferers with ADHD have problems with their dopamine receptors.

http://www.eurekalert.org/pub_releases/2009-09/dnl-dib090309.php

fgzk 10:14 am 23 Feb 10

Mordd I’m sorry that your doctors and parents conspired to drug you at an early age. The effects of ridilan and dexamphtimane can be polar opposites depending on if you actually have ADHD/ADD. Most people find stimulants actually get them going. Ever had coffee put you to sleep in the morning. No, then maybe you don’t have ADD/ADHD.

You should apply some of that brightness to your argument. If people diagnosed have a mental health issue that fits ADD/ADHD then they legitimately have ADD/ADHD. It is legitimate, you would know so if you have it. Its not something you can think your self out of. Even if you are a bright healthy adult. Whilst the drugs do have side effects for adults, what they do is enable ADD/ADHD people to share in a normal work/home. Sure don’t take the drugs but don’t expect to be act normally. Expect to be ridiculed, blamed, put down, harassed, tormented for all your failings as a human. Expect a lifetime of being told your a pathetic self induced failure who needs to just step up to the mark. Expect to be told that your not even legitimate.

Maybe the parents are to blame for food or food companies for additives. Maybe not. The parents may be to blame as Ive noticed that ADD/ADHD runs in the family. If a child comes from a poor back ground then you might like to look at how ADD/ADHD effects adults and you might notice some similarities to the behavior/situation of parents.

The whole argument of, ADD/ADHD does not exist, is just more of the same for us. Lies.

Mordd 12:21 am 23 Feb 10

Inappropriate said :

As an adult sufferer, who was diagnosed as an adult, I’m sorry to say there’s not much support in the ACT for it.

And for the deniers: I was not a violent, out of control kid raised on junkfood. I was given love and discipline, did well in school and went to a highschool for the gifted. I have a uni degree, a job and a GF. I do not fit the stereotype, but I do suffer from ADD – the non hyper kind. I don’t pretend to have it, so I can score the meds, in fact I cannot take the meds because they have wheat in them and I’m a celiac.

I’d love for the deniers to spend a week in my mind.

I also was not a violent, or out of control kid raised on junkfood (ill refer my mum to the site if necessary to vouch for that :P), did well in school, and I attended a private school where I was in accelerated learning programs for gifted children. These days I have a Certificate IV, a job, and I choose to be single. I didn’t fit the stereotype as a kid and I should never have been given ADHD medication. I did however have trouble staying focused on mundane learning as many gifted children do when taught below their level, and because of this and a school with the worst bullying program in the history of education, I was diagnosed with ADHD and forced to take Riralin by my parents for a number of years. The psychiatrist who diagnosed me told me himself at the time that he had ADHD but didn’t need to take medication for it as he was an adult, which at the time made no sense to me and served more to infuriate than anything else. You hear many great things when diagnosed with ADHD as a kid, things like the condition itself makes it impossible for you to see yourself why your behaviour is not good, so therefore you just have to take these drugs and ignore the strange mood swings and violent feelings it causes as the adults know best.

I’d love for all those who preach the ADHD/ADD myth to spend a week in my mind as 10-15yr old taking Ritalin and how completely fucked up it makes you feel mentally and physically.

See a good psychiatrist and/or a good counsellor, im not denying those diagnosed with ADHD/ADD don’t necessarily not have mental health issues, but I will deny the legitimacy of ADHD/ADD itself, the science simply doesn’t add up on it, and it hasn’t ever since about 2005 when numerous short and longer term studies into the “illness” have raised more and more questions that show that it is mostly poppycock.

cleo 11:29 pm 22 Feb 10

I know when my children were young if they drank soft drink or ate ice-blocks they were awful,fighting with one another, I figured this out myself and removed rubbish from their diet, there was a huge change, and this has carried on in their adult life, I myself also eat as natural as possible, my sister has celiac, I’m lactose intolorent, cannot eat much bread, or pasta.

NeedHelp 9:54 pm 22 Feb 10

astrojax said :

Where was ADHD in the 50s, 60s and 70s?

same place autism was in the decades, centuries, before a diagnosis, needhelp… it would have been treated as being a ratbag kid and they would have been beaten within an inch (or closer) of their young lives for rampant ‘misbehaviour’.

True, but there were far less preservatives in food back then. There are far more brats in the world these days thanks to preservatives. The kids and people of today are guinea pigs. In years to come, many preservatives will be banned as they make new discoveries about side-effects etc; it’s already starting to happen.

astrojax 8:35 pm 22 Feb 10

Where was ADHD in the 50s, 60s and 70s?

same place autism was in the decades, centuries, before a diagnosis, needhelp… it would have been treated as being a ratbag kid and they would have been beaten within an inch (or closer) of their young lives for rampant ‘misbehaviour’.

NeedHelp 2:55 pm 22 Feb 10

Thanks for sharing Inappropriate. I’m not a denier. I was only referring to the research that states that preservatives have a lot to do with ADHD. I’m sure there are other causes too.

From what I’ve just read, Adult ADD can be very difficult to cope with.

http://www.helpguide.org/mental/adhd_add_adult_symptoms.htm

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